I am so damned tired of this wound vac
It weighs four pounds and when it's not plugged in to the wall I get three hours' worth of battery. I've become adept at totally disconnecting the fucker, and life is so much easier with only a tube coming out of my back.
Tuesday after next I see the cardio-thoracic surgeon again, and I'm hoping he will remove it.
Meanwhile, my disabled daughter is being shuttled back and forth between the hospital and rehab. She has seemed semi-comatose, unable to walk even, since August when she had breakthrough seizures for the first time in 35 years. She has Angelman Syndrome, which is very rare, and no doctors seem to know what to do with/for her. And here I am, her strongest advocate, laid up since last November, unable to even visit because I'm so immuno-suppressed.
Sometimes death seems tempting (I have my supply of pills) but how can I leave her now? Between my ailments, and my husband who is healthy and carrying a load greater than anyone should ever be expected to, all I want now is my mother, who was never much use when she was alive and certainly couldn't help now.
Thanks for the opportunity to vent.
= new reply since forum marked as read
a gentle 
and good vibes that things will better.
Vent away; a good friend used to say we all need to vent, otherwise we'd explode.
Sending you some healing energy 💚