Would anyone like to share experience with Reclast or other

[Marthe48]

medicine used to treat osteoporosis? My cousin might need to start one of the medicines and they are looking for information from people that might have used it.

Thanks so much for any information

[Irish_Dem]

1. Do not get the once a year infusion treatment for osteoporosis.

I got once a year infusion of reclast and had a serious side effect which lasted an entire year.

It dropped my blood pressure very low. I keep fainting during the day.
I had to sip on Gatorade all day to prevent the dizziness and fainting.

And then I had a routine colonoscopy where my BP went to 40/20, a medical
emergency and scare the heck out of the medical team.

They had to keep me in the hospital to observe me.

Once the year had passed I was fine.

The point is about a one year infusion is that if you have a side effect you
are stuck with it for the entire year.

[Marthe48]

2. Thanks for that information

They had heard something like this, but couldn't remember who told them. They mentioned that if you have a reaction to a pill, you stop taking the pill. With an annual injection, you're stuck. (no pun intended!)

Glad you got better from your experience.

[Irish_Dem]

3. Yes if you are taking a pill and have an adverse side effect, you stop the pill.

There was nothing I could do but wait out the year.

Yes it was just like clockwork, right around the time the year was up, my BP went back to normal.

[markie]

4. I am into

6 months of 12-month Evenity treatments... very expensive but my insurance is covering it. I have not had a bone density test since I started so I can't attest to effectiveness. I have had no side effects (I choose to take the injections in my belly). I am very hopeful that the Evenity and extra calcium / D3 will help.

My doctor has said that some of her patients have had very good results.

[CareyOn]

5. I have had 4 infusions over about the past 8 years.

Last edited Tue Apr 1, 2025, 04:17 PM - Edit history (1)

Have had no side effects. Last April I had extensive back surgery which included removing old pins and replacing
with updated hardware. The surgeon was extremely pleased with the density of my spine and having fought
osteopenia for a decade I can only attribute my strong bones to the infusions. I have several forms of arthritis
and some of my meds are not good for bone health so I am grateful for the reclast. I should add that I have a very sensitive stomach so, when possible, I opt for medications that don't have to be taken orally.

[DelMar dem]

6. Reclast reaction

I developed a rash around my torso following a Reclast infusion. Fortunately it didn't itch, but it lasted about three months. I've been on Prolia ever since and never had any side effects following injections, which I get every six months. This is also an expensive drug, but Medicare pays for it.

[Marthe48]

7. Thanks for this information

I passed it along to my cousin.