End of Life Issues
Related: About this forumCollecting my thoughts
I have gathered up the various bits and pieces I have written over the last two weeks. This morning I edited them into this letter that I'm sharing with the small circle of friends in whom we have confided as events unfolded. In this circle I include all the members of DU who have shared the process and offered such whole-hearted support here on the End of Life board. You are a rare and fine group of people, and I'm proud to have you as friends.
After this post I shall go silent until after Kathleen's passing. Thank you all once more.
The Jackalope (née Bodhi Paul Chefurka)
The experience taught us both that amateur suicide is a risky, failure-prone undertaking (please pardon the dark pun.) It's easy to think you know more than you do, and of course there's no chance to practice. I can't stress how much I do not recommend it if a medical option is available. The following morning she initiated the request for professional assistance under the legal provisions for MAID (Medical Assistance in Dying).
Kathleen has had a deep, lifelong mistrust of institutions and the people who run them - especially medical institutions. Her fear of losing her autonomy to a bureaucracy that cares more about its rules than her needs was what made her determined to do it on her own. In the end, it seems her fears were unfounded, and any slight risk to her autonomy is vastly outweighed by the professionalism and compassion of our palliative medical community. Blessings upon all these angels of mercy.
Neither she nor I are all that attached to life, it would appear. That took some of the edge off what would normally be a very fraught decision. As always I am in complete alignment with her wishes, and am in awe of her courage and clarity. We are indescribably grateful to live in civilized 21st century Canada, with access to both legal medical marijuana and legal medical suicide.
Kathleen has had two independent medical assessments as required by law, and has been ruled eligible to receive medical assistance in dying. She will have the procedure on Wednesday, September 5, 2017 after the mandatory ten day waiting period has expired. The consulting physicians were kind, empathetic, and caring beyond our expectations. They are doing everything in their power to ensure her a peaceful, pain-free death. The home care nurses who have come every day are similarly dedicated to her comfort. The entire palliative care system has performed in the highest traditions of compassion at every turn.
She and I have been meditating on the amount of horror and misery that exists in the world. In contrast, the degree of privilege represented by our experience is breathtaking and humbling. That it is available without cost or question to an ordinary, impoverished middle class couple scrubs away the grimy crust of cynicism, to reveal the best of humanity.
There is no sadness in our home today. Instead there is a spirit of quiet celebration and joy. We both feel a profound sense of completion.
Our journey that began 45 years ago at a smoke-filled hippie party and wound its idiosyncratic way through years of friendship and decades of separation, has culminated in a seven-year explosion of unconditional love when we re-united in 2010.
We have done everything that needed doing; we have left no thoughts unspoken. We have forgiven everyone - whether they needed it or not; we have told all our loved ones how much we love them. We have said our good-byes, no more words are needed. The look in her eyes tells me that we are truly one soul.
When we look into each other's eyes for the last time next Wednesday, as the doctor gives her the release she desires, it will be with full consciousness and the certain knowledge that neither of us is really going anywhere.
May all beings find peace.
cilla4progress
(25,876 posts)And light to accompany Kathleen on her journey. And comfort to you both.
Please hold her in love once for me, and thank her for her brave sharing.
Blessings on you both!
Hayduke Bomgarte
(1,965 posts)I'm in palliative care myself, and stand in awe of the resolve and courage shown by both your wife and yourself. I wish I could muster a fraction of it.
CaliforniaPeggy
(152,048 posts)Thank you for sharing your letter. I am profoundly moved and honored to be present in these days.
And how rare is this: The look in her eyes tells me that we are truly one soul.
May peace and love accompany both of you through all your days.
samnsara
(18,281 posts)....please check back in to let us know how you are doing. Godspeed Kathleen.
3catwoman3
(25,416 posts)Thank you for also sharing your names. I will remember Kathleen without having met her.
Response to 3catwoman3 (Reply #5)
lunatica This message was self-deleted by its author.
lunatica
(53,410 posts)I have no words. Only tears reading this.
askyagerz
(901 posts)You have truly shown us the beauty of life.
Hekate
(94,598 posts)nolabear
(43,215 posts)I am so sorry this has to be, but since it does I am happy she won't face the mystery without knowing how beloved she is.
My thoughts will be with you both. May Kathleen cross easy. ❤️
AwakeAtLast
(14,253 posts)radical noodle
(8,558 posts)I will send loving thoughts for her to have a beautiful journey on Wednesday.