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LuckyCharms

(23,408 posts)
Mon May 25, 2026, 01:59 PM May 25

I'm freaking out a bit. [View all]

Taking Xanax and pot gummies on alternate days to try to calm myself down.

I don't want to scare my wife...she has enough on her plate. She gets scared when I'm sick.

Woke up the other day mostly blind. Dumped "Systane" eye drops in my eyes all day...eyes eventually cleared up to the point of tolerability. My floaters are ridiculous. Straight lines are crooked. Letters of the alphabet all run together like jackstraws.

I have 3 doctors...a retina specialist, a regular eye doc, and an optometrist. All 3 of them are so goddamn busy, that they spend about 3 minutes explaining this shit to you before running off to the next patient. They skirt around my question "Am I going blind". Retina doc says it's the front of the eye causing the problems. Regular eye doc says its the retinas.

I get Eylea eye injections. They help for a bit sometimes.

Here's what the report from my last visit to my regular eye doc says:

Established patient. Type 1 with ocular complications. Severe nonproliferative diabetic retinopathy OU. Dry eye syndrome OU. Meibomian gland dysfunction all 4 lids. Macular RPE changes. Diabetic Macular edema OS. Vitreous floaters OU. Posterior capsular haze OU. pseudophakia OU.

The above is from the regular eye doc...not the retina doc. I don't have a write up for those problems.

I've been posting here either way too much, or hardly at all. That's because I'm scared shitless.

I have some real-life shoulders I can cry on, but those that I can cry with depend on me, so I don't want to scare them, so I type out my fear here.

I'm scared, and this sucks so bad. no response needed, I'm just venting. I'm going to get off the computer and go work myself to exhaustion so I can get some sleep.

Thanks for reading.

103 replies = new reply since forum marked as read
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I'm freaking out a bit. [View all] LuckyCharms May 25 OP
We're pulling for you. ❤️ underpants May 25 #1
What underpants said. irisblue May 25 #2
Yes. Harker May 25 #4
+1 pat_k May 25 #45
Sending a warm hug your way Lifeafter70 May 25 #3
Hugggggs. We are all here for you. niyad May 25 #5
I've found, over the last 10+ years, that personalized caring has decreased tremendously. erronis May 25 #6
Can't overestimate how critical being your own advocate is. pat_k May 25 #50
With my dad and now my husband, I've found they can't focus on telling the doctor summer_in_TX May 25 #87
Excellent points I need to do a better of keeping in mind. pat_k May 26 #92
Grrr. summer_in_TX May 26 #95
It's scary Marthe48 May 25 #7
Sending hugs cate94 May 25 #8
Next visit SuzyandPuffpuff May 25 #9
A nice reminder that there are sicker people than me here on DU. KS Toronado May 25 #10
We don't communicate often, but I read your posts... LuckyCharms May 25 #48
OK Lucky practice what you preach .........."You hang tough, OK?" KS Toronado May 25 #51
You better be doing the best you can! LuckyCharms May 25 #52
I keep you in mind Marthe48 May 25 #75
Please hang in there, KS Toronado Niagara May 26 #102
I hear you and I understand FakeNoose May 25 #11
Not trying to complicate your anxiety but... littlemissmartypants May 25 #12
You know, on this exact date last year, 2025... LuckyCharms May 25 #66
Did you find a new neurologist? Did anyone actually share with you that you... littlemissmartypants May 25 #70
LMSP.... LuckyCharms May 25 #71
Don't make me have to come over there, LC! littlemissmartypants May 25 #72
I'm ringing my doorbell button!!!! LuckyCharms May 25 #73
I'm paddling as fast as I can. littlemissmartypants May 25 #74
One oar? LuckyCharms May 25 #76
😉 littlemissmartypants May 25 #77
Good luck, seriously! But you should tell your wife. She needs to know. LymphocyteLover May 25 #13
Sending hugs. iluvtennis May 25 #14
I sincerely hope your medical providers can find solutions Tanuki May 25 #15
The Ohio Low Vision Agency were immensely helpful Marthe48 May 25 #79
Can we find a patient advocate for LuckyCharm? Bobstandard May 25 #16
I think that is a very important suggestion. niyad May 25 #26
I do, too. calimary May 26 #94
🫂🫂🫂🫂🫂🫂 Chicagogrl1 May 25 #17
Sending hugs to you ,Lucky, debm55 May 25 #18
I'm so sorry you have to go through this. Aging is awful Mr. Mustard 2023 May 25 #19
I'm sorry you're going through this, LuckyCharms. Buddyzbuddy May 25 #20
Sending you positive vibes. greatauntoftriplets May 25 #21
I'm with whoever said stage left May 25 #22
I wish I had the cure for you blue-wave May 25 #23
I have AMD, the wet form in my left eye for which I receive injections Joinfortmill May 25 #24
Your friends here care about you, amigo JoseBalow May 25 #25
Oh my goodness! I certainly hope everything is figured out and worked out. LoisB May 25 #27
We hear you markie May 25 #28
Uhm, kozar May 25 #29
Uhm, who said I was confused? LuckyCharms May 25 #30
Ok you're freaking out, kozar May 25 #34
Ok kozar... LuckyCharms May 25 #35
Post removed Post removed May 25 #37
Bye now. LuckyCharms May 25 #38
Post removed Post removed May 25 #53
!!! LuckyCharms May 25 #57
You were right to speak up. The last thing you need or deserve Tanuki May 26 #93
Sorry about all the anxiety. Figarosmom May 25 #31
I don't blame you for freaking out or venting Niagara May 25 #32
One eye blind myself Bmoboy May 25 #33
I wish you the best. LuckyCharms May 25 #83
That's a huge load of stress. So much Ilsa May 25 #36
Several of those things are related to diabetes. Ms. Toad May 25 #39
My best a1C recently has been 6.8... LuckyCharms May 25 #42
It's not clear to me whether the impact of tight control on vision is because of the insulin - Ms. Toad May 25 #68
You always post great helpful advice. Thanks so much. LuckyCharms May 25 #69
All the best to you Lucky and just one thing mountain grammy May 25 #40
Oh she knows about it, mountain grammy... LuckyCharms May 25 #41
Good.. So glad to see this. mountain grammy May 25 #44
I can relate LC. Having issues as well and my eye doc retiring. Cataracts maybe.Blurry. Evolve Dammit May 25 #43
Wishing you all the best richdj25 May 25 #46
I know where you live and perhaps specialists are somewhat limited. Katinfl May 25 #47
That might be the next step... LuckyCharms May 25 #49
sorry you are suffering Kali May 25 #54
Thanks so much, Kali. LuckyCharms May 25 #55
diabetes is sure a suspect in degenerative eye things. rampartd May 25 #56
LuckyCharms, I'm so sorry. I can't imagine. You are in my thoughts, and I'm glad Scrivener7 May 25 #58
I'm so sorry you're going through this, Lucky. Diamond_Dog May 25 #59
Your typing is really good for someone with bad floaters! True Dough May 25 #60
asd jb kkarfty!!!!!111!!! LuckyCharms May 25 #61
Hold on! True Dough May 25 #62
!!! Kali May 25 #63
loma... LuckyCharms May 25 #64
I'm so sorry, LC. Sending hugs and healing vibes. My sister's dealing with multiple eye problems, too, highplainsdem May 25 #65
Thanks so much highplainsdem... LuckyCharms May 25 #67
Hugs and good strong wishes some_of_us_are_sane May 25 #78
I hope the current doctors or maybe a new one, can sort things out for you. I understand the anxiety appalachiablue May 25 #80
Good vibes, good wishes, and big hugs to you, Lucky Bayard May 25 #81
LuckyCharms have some healing vibes...... pdxflyboy May 25 #82
Oh hugs, Lucky WhiteTara May 25 #84
I hope you find a specialist who will take his time and figure out if a transplant would help. 58Sunliner May 25 #85
Lucky, it's okay to be scared. hamsterjill May 25 #86
Healing vibes on the say to you SheltieLover May 25 #88
Sending big hugs, LC. summer_in_TX May 25 #89
When the thoughts get negative practice redirecting your thoughts oldmanlynn May 25 #90
Smoke more pot. OAITW r.2.0 May 26 #91
Thinking of you friend. Dunc May 26 #96
Completely understandable orangecrush May 26 #97
I hope this will help. Trueblue Texan May 26 #98
My good friend. I am very sorry to learn of you going through all this. NNadir May 26 #99
Effing diabetes! Healing and calming energy to you LC 💚🩵 Clouds Passing May 26 #100
Hang in there, my friend UpInArms May 26 #101
I am sorry this is happening to you Bettie May 26 #103
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